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Porphyria & Pain Scale

It is very difficult to explain to someone how bad your pain is.  How do you quantify and communicate  pain levels when everyone experiences pain on a different level,  a certain level of pain varies from person to person with one perhaps having a higher pain threshold than the next person.


Caregivers will often ask you to rate your pain from 0 – 10.


The following was written by a porphyria patient , the content is so relevant, we suggest printing out a copy of the downloadable document and adding it to your medical records / file which you can take with you when seeing your doctor or caregiver.

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