Porphyria & Pain Scale
It is very difficult to explain to someone how bad your pain is. How do you quantify and communicate pain levels when everyone experiences pain on a different level, a certain level of pain varies from person to person with one perhaps having a higher pain threshold than the next person.
Caregivers will often ask you to rate your pain from 0 – 10.
The following was written by a porphyria patient , the content is so relevant, we suggest printing out a copy of the downloadable document and adding it to your medical records / file which you can take with you when seeing your doctor or caregiver.