Patients Stories

29 Jun 2021

My VP Story

My name is Karen van Zijl age 47, born in South Africa and have Variegate Porphyria, here is my story.

My VP Story

12 Jun 2021

My Porphyria Journey

At the age of 23, I was officially diagnosed as having the hereditary disease Variegate Porphyria, otherwise known as ​ VP, Porphyria Variegate, South African Genetic Porphyria​​ or as some have called it “the vampire disease” ​. ​

My Porphyria Journey

12 Jun 2021

My Story with VP

Some see what they lost; I see what I gained.

My Story with VP