MEDICAL & HEALTH DISCLAIMERS
The content on this website is for informational, supportive and educational purposes only.
It is not intended to provide medical advice or to take the place of such advice or treatment from a personal physician. Readers / users of this website are advised to consult their doctors or qualified health professionals regarding specific health questions. The South African Porphyria Foundation, the founders, members, nor the publisher of this content takes responsibility for possible health consequences of any person or persons reading or following the information in this educational content.
All viewers of this content, especially those taking prescription or over-the-counter medications, should consult their physicians before beginning any nutrition, supplement or lifestyle program. The material content reflected on this Site is the culmination of years of research from various sources and is administrated by diagnosed Porphyria patients with no formal medical education.
The South African Porphyria Foundation, its administrators, editors, volunteers and members take no credit / responsibility for any information shared unless otherwise stated and do so in good faith through years of personal experience. We draw to your attention that what may work for one person will not necessarily work for another. The research is simplified to get the information across in easy to understand terminology with the intention of helping as many people as possible that deal directly or indirectly with this rare disease.
Visitors who use this Site and rely on any information contained therein do so at their own risk.
The information contained on this Site is solely for educational and information purposes for Porphyria patients and may not be used as a substitute for professional advice / and or information.
Circumstances will vary from individual to individual. You should not act or reply upon this information without seeking professional advice. Any materials or content are not intended to nor do they constitute professional advice unless otherwise stated.
Variegate Porphyria – South African R59W Mutation -
An international PORPHYRIA support group to share and compare, with a proud South African home.
The aim of the SOUTH AFRICAN PORPHYRIA FOUNDATION is to raise awareness, offer support among patients, caregivers and families on Variegate Porphyria - and other porphyria types.
If you are not South African, or if you have another strain of porphyria other than Variegate, we welcome you in our fold with warm and open arms.
Our goal is to support, create awareness, educate and help ongoing research for future generations with PORPHYRIA.
It is important for existing members and all the other Porphyria support sights to know that working together, we are stronger.
Your support, advice and input through the years inspired us to give South African patients a homegrown website in order to support local issues such as:
• Contact details, addresses, and venues
• Names of medication(s),
• Medical facilities,
• Doctors and caregivers,
• Medical aids
• Measurements and value scales
• Currency values
• Languages and terminology (Afrikaans and English)
• Regional Climate and weather forecasting
Seeing that South Africa is "home" of Variegate Porphyria, and does not have a support group to answer these local issues we thought it best to tackle this beast first and foremost.
Variegate Porphyria is the combination of both ugly worlds of this disease (skin and nervous system), and we hope to spread our support far beyond our borders, whilst creating much needed awareness in South Africa in future.
We hope with the help of international groups and experienced patients such as yourselves, we can stand proud and make our South African mark not only on medical articles as in the past, but also at helping so many that suffers with porphyria in future.
All material reflected on this site consists of a combination of years of research from various sources and is administrated by diagnosed Porphyria patients with no formal medical education Admin takes no credit / responsibility for any information shared, and do so in goodwill through years of personal experience.
What works for one does not necessary work for another person.
Research is simplified to get information across with as little confusion as possible, and to help as many people possible that have to deal with this rare disease directly or indirectly.